Alex Murray, Talent & Organisational Development Advisor, caring for her son Jack
Alex's caring experience
Earlier this year, just two weeks after returning from my second parental leave, my life changed unexpectedly when my otherwise healthy three-year-old son, Jack, experienced a seizure that came completely out of the blue. What followed was the most challenging period I have faced since becoming a parent. In a few short weeks I experienced three ambulance trips, including one where Jack went unresponsive, multiple week-long hospital stays, and countless tests and procedures as doctors worked to understand what was happening as he got progressively worse. Jack has now been diagnosed with a rare auto-immune disease which was causing swelling on his brain, optic nerve and spine as well as epilepsy.
Thankfully, whilst we still have lots of appointments and a long journey ahead, Jack is now home and getting better every day. Whilst he is still considered to be immune compromised and unable to do everything he used to, it is great to see the progress he has made. He even recently learnt to ride his bike without training wheels which was such an amazing achievement after what he has gone through over the past few months. While our journey is far from unique, it highlighted to me just how quickly life can change and how suddenly someone can find themselves in a caring role.
Balancing work and caring
Access to carers leave provided by Vicinity has allowed me to attend Jack's appointments and be there when he has needed me most, while flexibility in how and when I worked helped me continue contributing at work while supporting my family.
What support makes possible
It also reinforced the importance of having a supportive workplace. Throughout this experience, I was incredibly grateful for the support of my leaders and my colleagues who showed empathy and worked with me to navigate what was a very uncertain and difficult time.
This National Carers Week, I want people to remember that we never truly know what someone beside us may be managing behind the scenes. A colleague who leaves early, works flexibly or takes time away may be balancing significant caring responsibilities that aren’t immediately visible. Many people, including me, may not even think of themselves as carers. By definition I am a carer, but to me, I’m simply Jack’s mum.